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Two fathers of children with rare diseases talk about starting biotech companies to try to create new therapies for their family members and others

  • 13 hours ago
  • 1 min read

Interviewed by MassBio CEO Kendalle Burlin O'Connell, Ilan Ganot describes co-founding Solid Biosciences in honor of his child with Duchenne muscular dystrophy and Daniel Fischer discusses co-founding Tevard Biosciences in honor of his child with Dravet syndrome.




Chapters

Intros - 1:11

Ilan Ganot | Starting a DMD company - 6:17

Daniel Fischer | Starting a Dravet company - 8:39

The Massachusetts ecosystem - 10:36

Being a CEO - 18:48

Advice for other parents - 23:43

Incentivizing rare disease research - 28:26

Global competition - 34:32

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